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Down's Syndrome support for families/carers

Speak to parents and families

It can help to speak to other parents and families who know how you're feeling.

You can do this by:

  • getting in touch with people on forums and social media
  • going to a support group – ask your midwife or health visitor about local support groups
The Down's Syndrome Association

The Down’s Syndrome Association is the only charity in the UK dealing with all aspects of Down’s syndrome. Their aim is to enable people who have Down’s syndrome to live full and rewarding lives. Visit their website here. 

The Down's Syndrome Association also has a list of support groups: The groups come in all shapes and sizes, depending on their numbers, ages and the interest and needs in their local area. The groups aim to provide a local network that provides friendship, support, social events and other events and activities.

Find your local support group here.

Other charities:

Mencap

For people with learning disabilities and their families.

Phone: 0808 808 1111

Website: www.mencap.org.uk

Email: helpline@mencap.org.uk

Contact

To support and bring together families with disabled children.

Phone: 0808 808 3555

Website: www.contact.org.uk

Email: info@contact.org.uk